Sunday, July 25, 2010

this stinky summer

well, it could be worse... we could have kids with more serious illnesses... I know... I know... so I will refrain from griping,complaining, crying and moaning here on the blog... and put it in my journal instead.
WE were at Day Care from 8 am til about 3 every day... and it is tedious... Considering Erin is only 9, she is a real trooper... letting the nurses and myself, add the topicals, cleanse her skin, scrape her scalp, etc...She has made significant progress but still has a ways to go before she is considered free and clear and back to healthy skin... sigh... one day at a time.

Of course any of you familiar with ASD know... that while we take care of Erin's psoriasis... changing the schedule has MAJORLY affected Ryan as well... NOT a HAPPY boy at all... waking at night, wetting the bed, not eating, hitting, crying etc... all stuff I feel like doing myself! lol
Woes me.. lol I said I wasn't gonna complain and look at me go!!

On to something crafty... well... sort of... I am going to share some of my favorite summer pics.I am participating in Big Picture's class Picture Summer... Here are some of my favorite shots from this summer... see, it hasn't all been a wash out!

and more to another week... this week, I am taking up the laptop so I can try and keep up with my blog readers and check out their blogs... I've been missing out on some things, Im sure!

Saturday, July 17, 2010


just flies when we are having fun... doesn't it?  Throw in a intensive reaction to Erin's psoriasis flaring up and AT ITS worst.. .poor baby... her entire body was covered by plaques/scales... even her scalp, ears etc... its like a bad bad case of poison ivy or chicken pocks with no medicine to treat!!
We are actually spending 3 days a week in the UVB/light therapy lab at Rhode Island Hospital. The nurses there are so knowledgeable and since she is so young, they just pamper her and make us feel like guests.
Monday and Tuesday this week we will be doing "Day Care" up there which means we go up around 8 am... stay there ALL day so they can treat her like royalty (lol... not really) they will be giving her Aveeno bathes, wrapping her scaly arms and legs in saran wrap after applying the medicated creams etc...
I will be basically chaperoning and keeping her company in between her "treatments"
She is always so exhausted so I probably will be taking great care of her next week...playing nurse mommy and napping myself in between her sessions.
Speaking of Erin being exhausted, I do have a layout to share. This was done last week for Studio Calico's challenge by Stephanie H... I scraplifted a fellow member Mel B... also from 2 peas.. ;) 
I will try and check in next week... wish us luck, say prayers and be back soon

Sunday, July 04, 2010

Happiest of Summers

to you all.... time just gets away from me ... enjoying the water, camping with the littles and just sleeping in the soothing air conditioning and drying out bug bites... well, just a bit of the things that was keeping me busy.
We took the kiddos to the drive in theatre last night to see Toy Story 3... very well done... super cute movie

Sharing some pics of our latest adventures ;)
 and will be back soon with some creative shares